tag:blogger.com,1999:blog-23653260.post115013918251976140..comments2023-09-09T01:27:32.972-07:00Comments on My MS Journal: A Flawed System!Jaimehttp://www.blogger.com/profile/09811736893524707971noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-23653260.post-1150393883859150692006-06-15T10:51:00.000-07:002006-06-15T10:51:00.000-07:00Thanks Anonymous~I will do that! I wish you would...Thanks Anonymous~<BR/><BR/>I will do that! I wish you would contact me or tell me who you are so that we could work together towards making these changes! If you prefer to keep anonymous online..you can email me at hjaimej@hotmail.com. I hope to hear from you. Please take care. <BR/><BR/>JaimeJaimehttps://www.blogger.com/profile/09811736893524707971noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-1150375993558051672006-06-15T05:53:00.001-07:002006-06-15T05:53:00.001-07:00I agree that the system needs to be fixed. You may...I agree that the system needs to be fixed. You may want to check out the following website that is working toward social security reform called the Social Security Disability Coalition. http://groups.msn.com/SocialSecurityDisabilityCoalition/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-1150375981114377692006-06-15T05:53:00.000-07:002006-06-15T05:53:00.000-07:00I agree that the system needs to be fixed. You may...I agree that the system needs to be fixed. You may want to check out the following website that is working toward social security reform called the Social Security Disability Coalition. http://groups.msn.com/SocialSecurityDisabilityCoalition/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-1150340200051382162006-06-14T19:56:00.000-07:002006-06-14T19:56:00.000-07:00Disability Blogger~I am SO glad you stopped by! I...Disability Blogger~<BR/><BR/>I am SO glad you stopped by! I have been doing some research and really think that we need to all come together (like in the case of the FMLA 1993) and MAKE this happen. I found out that the <A HREF="http://www.nationalpartnership.org/Default.aspx?tabid=34" REL="nofollow">National Partnership for Women & Families</A> were a big part of getting that passed through legislation. I made some calls to Washington D.C. today to their offices. <BR/><BR/>I really think that if I could get enough of us to come together than we can make a difference. I also sent off another letter to Congressman Hastings today! I want some results! Our lives very well could depend on it (the medical piece that is). <BR/><BR/>I am open to all suggestions and you can contact me through the email listed on my blog. I hope you are well. Please take care. <BR/><BR/>JaimeJaimehttps://www.blogger.com/profile/09811736893524707971noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-1150332620844786502006-06-14T17:50:00.000-07:002006-06-14T17:50:00.000-07:00You're right. I am a former disability examiner ( ...You're right. I am a former disability examiner ( I blog about this at <A HREF="http://www.disabilityblogger.blogspot.com" REL="nofollow">My Social Security Disability Blog</A>) and we used to talk about this inequity at the office. If you get approved for SSI, medicaid is there for doctor's visits and prescriptions. If you get social security disability, you're eligible for medicare not medicaid, but only after your date of entitlement, two years after your eligibility date for disability has been established. Making it even worse is the fact that if you're approved for social security disability, you lose five months of your benefits (they call it a five month waiting period). But if you get SSI, you are not subject to being robbed of almost half a year of benefits. This part of the system has always been flawed and unfair.Disability Bloggerhttps://www.blogger.com/profile/14890188944381642816noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-1150239391401763462006-06-13T15:56:00.000-07:002006-06-13T15:56:00.000-07:00That is the thing isn't it. I would love to be wor...That is the thing isn't it. I would love to be working right now...and on some days I probably could, but others I can't...that is the problem with this illness, you just never know from day to day. This is why I have been trying so hard to work with my doctors to regain my health and for me MS is not the only health concern (there is the asthma and hx of cancer, liver issues from that treatment, and now the bone problems). <BR/><BR/>Not to mention if you work even on a part time basis then they start to cut the few benefits you do have (making it even harder for you to regain your health so that maybe one day you can go back to work full-time). <BR/><BR/>Without a better system in place what are we to do? The thing is I think it is going to be up to people like us to MAKE these changes happen! The reality of it is that unless someone who was in charge (i.e. congress) became sick and was forced to go on SSDI they are not going to understand really what we go through, but that won't happen because they are in a position where they will be taken care of medically and finacially for the rest of their lives. <BR/><BR/>I do believe that there is power in numbers however! If we could get enough people to come together who have gone without medical for the 2 years or scraped by or are still suffering to speak out...that would be a start. Also, all of the people like you, Camille, who are still fighting to get on SSDI. <BR/><BR/>If we could figure out how the people came together to get the FMLA of 1993 accomplished that would be the way to go! A petition is one way, but that can take a long time. We need a large number of people and a legistlative hearing (I think that is how to proceed). I am still doing research, but I do think it is something worth fighting...for everyone out there who is disabled (MS or not)!<BR/><BR/>I hope you are doing well. Please take care. <BR/><BR/>JaimeJaimehttps://www.blogger.com/profile/09811736893524707971noreply@blogger.com