tag:blogger.com,1999:blog-23653260.comments2023-09-09T01:27:32.972-07:00My MS JournalJaimehttp://www.blogger.com/profile/09811736893524707971noreply@blogger.comBlogger990125tag:blogger.com,1999:blog-23653260.post-86910656575374880962013-02-27T09:05:47.831-08:002013-02-27T09:05:47.831-08:00my dad served in vetnam and was exposed to agent o...my dad served in vetnam and was exposed to agent orange.1 year ago i was dx with ms and now my sister is being dx with ms.i think there is a link.<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-29645196049080519482013-02-19T18:08:51.503-08:002013-02-19T18:08:51.503-08:00I am a Viet Nam vet that worked on the aircraft th...I am a Viet Nam vet that worked on the aircraft that sprayed Agent Orange. I was drenched in the chemical on a regular basis. My daughter was just diagnosed as having MS. Unfortunately there is little known about the disease, cause or cure. They, the VA claim there is no link between the two. May God bless all that have this disease and hopefully someday a cure will be found<br />Ted HeckertAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-11598967220158879352012-07-14T18:52:06.663-07:002012-07-14T18:52:06.663-07:00I have two daughters, both have MS. Their father w...I have two daughters, both have MS. Their father was exposed to agent orange in vietnam. Is there some kind of study of children of vets that were exposed to this chemical? I only have these two daughters, it seems unusual that they would both have it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-88136886544298987582012-04-14T08:23:11.685-07:002012-04-14T08:23:11.685-07:00A FB forum created by MS Patients treated by Hemat...A FB forum created by MS Patients treated by Hematopoietic Stem Cell Treatment (HSCT) for MS. Former patients who held a joint desire to have a central meeting point exclusively for MS'ers that have had HSCT treatment or are interested in supporting others in having HSCT as treatment for their MS. <br /><br />This forum was intended as one of the few forums where it is possible for those interested in treatment, to talk directly to one of the 600 patients in the world that have had the treatment thus far. A treatment that has resulted in progression free remission for 85% of those treated, for periods of greater than 5 years. The forum was to enable those seeking information of first hand experience of navigating through patient selection criteria for the offical FDA phase III trials that are also used at treatment centers offering the treatment currently. <br /><br />We hope this forum will become the defacto world-wide meeting and central gathering place for MS'ers that have had HSCT to beat their disease and for those that would like to do so without the distraction and confusion of extraneous topics and without anyone trying to sell or market for-profit business interests. <br /><br />HSCT has been used to successfully treat the following diseases as well as MS. <br /><br />Rheumatoid Arthritis; Bullous Pemphigus; Chronic Inflammatory Demyelinating Polyneuropathy; Crohn's Disease; Myasthenia Gravis; Peripheral Vascular Disease; Polymyositis; Scleroderma; Sjogren's Syndrome; Vascular Biology<br /><br />There are over 50 disease of the immunity disease that is treatable by HSCT. If you have any immunity disease come join us. We may not know as much as yourself about your disease but we may have members with the same disease and we maybe able to assist you in finding the research that supports treating your disease. <br /><br /><br />https://www.facebook.com/groups/149103351840242/carmel turnerhttp://www.msstemcell.comnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-3680713320602492462011-10-08T02:33:04.987-07:002011-10-08T02:33:04.987-07:00My family and I were exposed to Agent Orange chemi...My family and I were exposed to Agent Orange chemicals via Fort Detrick, MD. There is a class action lawsuit going on now. You can look it up online under "Fighting for Frederick". One of the illnesses caused by Agent Orange is MS. Any type of auto immune illness.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-44420187188436529552011-09-08T11:33:35.092-07:002011-09-08T11:33:35.092-07:00Mothers are the best!Mothers are the best!Sinus Symptomshttp://activesinus.com/sinus-symptoms.htmlnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-35248188542744520742011-06-09T10:51:24.559-07:002011-06-09T10:51:24.559-07:00I hope that the shot is treating you better! I unf...I hope that the shot is treating you better! I unfortunately have been taking Avonex for 3.5 yrs and STILL react to it :( Godspeed to you :)MsFortuknithttps://www.blogger.com/profile/03206175717607363030noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-68531535504600587812011-05-23T01:31:59.024-07:002011-05-23T01:31:59.024-07:00Hi, I am a fiend of Thomas's and have moved to...Hi, I am a fiend of Thomas's and have moved to Germany would like to contack him and se if he want toride in Germany. If you have anyway ofcontacting him that would help. My name is Suzanne and my email is Suziemjohnson@yahooo.com/ ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-9715113258183993532011-05-22T13:55:55.905-07:002011-05-22T13:55:55.905-07:00Hi Jaime,
Thanks for sharing what is happening wit...Hi Jaime,<br />Thanks for sharing what is happening with you, you say you often do not know what to write, that you do not want to write just for the sake of it.<br /><br />I used to worry too about what to write.<br />These days I just write about whatever comes into my mind, I write everyday and find its easier than writing every now and then.<br /><br />Our blogs are our diaries, a record of our lives so never meaningless, really never meaningless.<br /><br />Good to read the doctor who thought outside the box helped you, we need more people like that.<br /><br />Sorry about my lack of visits.<br />Spike's, our dog, illness, quick death in nov/dec and being so ill jan/feb to march meant no visits <br />Since then I have been spending more time sitting in my wheelchair I have also not been visiting<br /><br />I just passed by to say hello.<br />I hope you are doing well.<br />Love,<br />HerradHerradhttps://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-63145321841940871212011-03-27T23:33:51.233-07:002011-03-27T23:33:51.233-07:00Hey Jaime! My name is Linda Grace Cox and I have ...Hey Jaime! My name is Linda Grace Cox and I have had MS since 1995. I did a test study also, Cytoxin, wasn't nearly as bad as yours. I have taken to blogging like so many MS survivors. My blog is http://msrelief.com. I'd love for you to visit me there. Also, www.fb.com/msrelief. I'd love to hear how you feel about the stem cell therapy. I'm creating a post for my blog as we speak. I found you in the National MS Journal. <br />Look forward to connecting with you,<br />LindaLinda G. Coxhttp://msrelief.comnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-68561458018428086812011-03-09T16:59:27.921-08:002011-03-09T16:59:27.921-08:00SHARING MY MULTIPLE SCEROSIS STORY
Hi This...SHARING MY MULTIPLE SCEROSIS STORY<br /> <br /> <br /> <br /> <br />Hi This is Dennis Allen I live in Roswell, GA with Three little boys 14Yr, 8Yrs., and 5yrs old. <br />I attend our local Multiple Support Group. I am sharing this info for anyone who also has MS. I often Imagine progression to a wheel chair. (What would I do?) Maybe someone could use this Helpful Info or could use this info that may help their Quality of life or Help Someone Else. First let me share my Breif story with you to give you back ground info on myself. After I was DXed with. RRMS since 1997. My Dr Immediately put me on one of the ABC-R Drugs. Not to get into a long, elaborate story, I gradually got very weak when I walked, and after some time (Months) I could not walk far or do things like walk a long distance or cut the grass. It increasely became enormousely difficult for me just to get to the bathroom. A friend told me about a nurse named Elainer Delack (1-866-222-3367) that may have helpful info. She was also Diagnose with MS. I called her and she told me her story. She was a nurse for a very long time and she too was slowed down with this Debilitating Disease. I am so thankful that Elainer Delack did not just give up and accept the fact that she had MS and could not no longer get around like she use to. Being the kind of passionate nurse she was, She immediately used her Drive and knowledge and all the time she researched and devoted, Her research and educated knowledge led her to a compound medication called Procarin Disc (Prokarin) used for energy(Help you Walk!). All you need is any Dr's Perscription. My quality of life has simply been amazing. I sometimes forget I have MS. I am so greatful, I want to help all who has MS too. When she told me her story I wanted to know where did she obtained her Compounded medication because I wanted the same Pharmaclst who mix the compound medication She told Me Michael Walsh (1-866-751-7004).Procarin Disc has helped me now for over Eight (8) years I want to share my story to help anyone who may need help. I asked my pharmacist Michael Walsh located at the Custom Prescription Shoppe in Washington State. How can I help others who do not have the $197.00 to and want to try Procarin Disc. Michael Walsh told me because you are so passionate to help others. If someone would like to try procarin Disc for the first time, have them contact me and tell them that "I was refered by Dennis Allen"(678-612-2120) and they will receive the first dosage for free. Elainer Delack is great and she will be happy to answer any questions you may have. (Procarin Disc is the size on a tablet you tape on your leg and is absorbed through your skin) Any Questions Please call Dennis Allen 678-612-2120. Medication instructioons say to apply daily and remove patch. I use one patch<br />for at least (1) to two (2) weeks (Retape for my shower)<br /><br />IF ANYONE WOULD LIKE TO SIGN UP FOR<br />MY CREDIT CARD PROCESSING FOR YOUR BUSINESS AND SAVE UP TO 30% PLEASE CONTACT ME. allen@netcompaysystem.com<br />www.netcompaysystem.comAnonymoushttps://www.blogger.com/profile/05222916928018830778noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-84068067648369367932011-02-15T09:21:35.276-08:002011-02-15T09:21:35.276-08:00AWESOME!!AWESOME!!Bike the US for MShttps://www.blogger.com/profile/05678386467995211493noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-52402986288835720442011-02-15T09:21:13.970-08:002011-02-15T09:21:13.970-08:00AWESOME!AWESOME!Bike the US for MShttps://www.blogger.com/profile/05678386467995211493noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-18778770418755618952011-02-09T13:53:05.234-08:002011-02-09T13:53:05.234-08:00Hi Jaime,
Nice to see you back and blogging again...Hi Jaime,<br /><br />Nice to see you back and blogging again! :) I am with you on the shot situation... my local doc has been great and is ordering them for me, but it will put me a couple of months behind schedule. <br /><br />I hope you get past all of your immunizations soon and feel better too! <br />Good Luck and I'll be praying for you!<br /><br />WendyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-59113286751153265802011-01-23T18:28:29.982-08:002011-01-23T18:28:29.982-08:00Thanks for sharing your story and experiences. Al...Thanks for sharing your story and experiences. Always helpful to know how MS affects others. I recently started blogging after being diagnosed with MS in September 2010. Feel free to check out my blog: http://optimisticwithms.blogspot.com/<br /><br />Thanks again!CSAhttps://www.blogger.com/profile/09255352402031602176noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-3437808711416750632010-11-11T10:09:08.275-08:002010-11-11T10:09:08.275-08:00WOW. I am speechless for a change.
I will be t...WOW. I am speechless for a change. <br /><br />I will be thinking about you and hope to hear more. There's always something going on...the challenge is to find what that is. While in isolation, I mean. <br /><br />Take care.Have Myelin?https://www.blogger.com/profile/05704037582961814202noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-86068035535035893832010-11-11T09:52:16.240-08:002010-11-11T09:52:16.240-08:00Oh that's so sweet!
I thought <3 was a h...Oh that's so sweet! <br /><br />I thought <3 was a heart on its side? Am I confused?<br /><br />I bet that made your day!Have Myelin?https://www.blogger.com/profile/05704037582961814202noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-23175296854270607932010-11-08T05:53:57.610-08:002010-11-08T05:53:57.610-08:00Ravi, I checked out your website and the travel ro...Ravi, I checked out your website and the travel roller looks like something that would help, having said that, I'm not sure how many people with MS could benefit from this product as it appears you have to be able to get on the floor to use it. Everyone with MS is so different and some of us can get on the floor, would maybe benefit from your product, able to take Yoga, etc. Then there are others who may not be able to. Anyway, I do wish you the best of luck with your product but I'm unable to say much on it without trying it out myself and it's just not something I would purchase at this time. Good luck and I hope you are well. <br /><br />JaimeJaimehttps://www.blogger.com/profile/09811736893524707971noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-84492280281068396342010-11-08T05:50:11.997-08:002010-11-08T05:50:11.997-08:00Thanks Kim! How are you doing? Things have defin...Thanks Kim! How are you doing? Things have definitely improved....haven't had a relapse in over a year, but I've had all the fun post-transplant side effects one can manage. Over all I am pleased with the transplant. It has not been an easy year and it's not looking as if the coming year will be a lot easier either (I'm currently in the hospital for an infection) but as much as I really do hate getting sick and don't like getting sick, at least I know I'm going to recover now, where there were times before that I didn't. Also, I'm so grateful for the "good" side effects I've had...like less asthma, no more major food and environmental allergies. Anyway, no one said this was going to be easy, at least there were no guarantees, and even more so none for the first 5 years which are the hardest, but they did say it could change my life as it does my immune system and it has. Hopefully my experience will also give them great information that will help to change the lives of everyone with MS! I hope you are well. Take care!<br /><br />JaimeJaimehttps://www.blogger.com/profile/09811736893524707971noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-56499845975340979452010-10-16T21:05:02.952-07:002010-10-16T21:05:02.952-07:00Hi Jaime,
I am so glad to see you make the one yea...Hi Jaime,<br />I am so glad to see you make the one year Mark...Woohoo! I just made nine months and can't wait to make the one year mark in January. I hope you remember me... I spoke with you over the phone and via email and phone before I had the Halt-MS. Thank You by the way. :)<br />I don't have the same contact info, but I would love to talk with you again. Here is my current email info... raffraybuzz@yahoo.com<br /><br />I hope to hear from you soon. ~WendyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-34412395850282340912010-10-16T20:56:14.848-07:002010-10-16T20:56:14.848-07:00Jaime,
I am so glad to see you make your one year ...Jaime,<br />I am so glad to see you make your one year mark...WooHoo! That is just awesome.I just made my six month mark this past July. I can't wait to join you in the one year mark,club.;)<br />I am so glad I was able to meet you via-email and talk to you by phone before I had the Halt. I never got to thank you for that...Thank You!<br /><br />I did not keep my old contact info that I had used at the time we emailed and spoke... so here is the new info...I would love to talk to you again. <br /> browneyedgirlization@yahoo.com<br /><br />~WendyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23653260.post-85420579841788128812010-09-27T17:17:03.933-07:002010-09-27T17:17:03.933-07:00Wow! Happy Birthday to you girl! You're soundi...Wow! Happy Birthday to you girl! You're sounding great and still making great strides in recovering from the transplant! So great.Unknownhttps://www.blogger.com/profile/06617846584381862711noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-41280837060529760192010-09-13T00:35:00.580-07:002010-09-13T00:35:00.580-07:00Jim,
I sure hope so! I think it's important...Jim, <br /><br />I sure hope so! I think it's important for them to see that Stem-Cell research is important not only for people with MS but for many illnesses. The fact that my stem-cell transplant not only helped my MS but also my asthma, allergies and heart just goes to show just how beneficial and important this research is. Imagine the possibilities! <br /><br />JaimeJaimehttps://www.blogger.com/profile/09811736893524707971noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-81914475523286298272010-09-10T22:09:30.976-07:002010-09-10T22:09:30.976-07:00Thank you so much for updating. It is great to hea...Thank you so much for updating. It is great to hear how well you are doing. Congratulations!Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-23653260.post-1542636455397097982010-09-10T15:23:47.781-07:002010-09-10T15:23:47.781-07:00Jaime,
It's great to hear your progress. Your ...Jaime,<br />It's great to hear your progress. Your story is one that Congress definitely needs to hear.<br /><br />JimAnonymousnoreply@blogger.com