This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
 
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Getting Ready For A Road Trip!

I LOVE road trips! It sucks that my last few trips have been to go see my doctors (no offense Dr. Jung & Dr. Shaw). It would just be nice to be going on a road trip for the sole purpose of going on a road trip, vacation, or to be spontaneous. Just to have some fun! Summer is almost here and I am finally starting to feel a bit better (it is about time - quick knock on wood that just because I said this I have not jinxed myself) and I am pretty determined not to let this MS take over anymore. I am SICK, SICK, SICK, and TIRED of it controlling my life. So, I am done allowing it to do so. I mean, granted, there is only so much control I have over that, I know. There are some things that I could be doing better though, and that is just what I intend to do.

For example, I had my last appointment with the physical therapist today and got a whole list of exercises to do at home (and the gym now that I will be going there instead). Plus, as of next week swimming three times a week (my goal is to get to where I can go every day) will also be a part of it. I met with a nutrition specialist yesterday and although I eat really healthy she gave me some really good tips for days when I am not feeling well and don't feel like cooking, or have road trips and MUST eat out. That is where I really fail. I will be working with her to make sure that I am doing everything I can do be as healthy as possible! My appointment tomorrow is with my neurologist and I will be talking to her about what more I can do to take back some control over my life.

This week has been crazy busy! I have had more appointments each day than I know what to do with. It is amazing that I am still able to stand up straight, lol. It seems that I am running around so much my head should be spinning. For example, today.....4 appointments, yesterday....2, Monday......also 4 appointments. Now, tomorrow I have to drive to Walla Walla at 7 am (which is about 1 hour to the east of where I live for an appointment) then back to get my things only to head out for my appointment in Seattle (which is 3 1/2 hours to the west of where I live). Friday will be much more relaxing. All I have to do is drive home and then I am done for a while! YEAH!

Tomorrow night is also the dinner through the National MS Society. I am taking my dad's digital camera (not sure if I will get pics at the dinner) and I will be posting the information as soon as I get back! There will be 4 of the top MS specialists at this dinner (limited seating, so it is more 1 on 1 questions) so there should be lots of great information. Also, this time of year it is so beautiful driving between here and Seattle. The Cascades are gorgeous! I will take some pictures and post them too! It will be a short trip, but I am gonna do my best to make some fun out of it.

Well, I hope all of you are doing good. If you are lucky, you are having a much more relaxing week than I am! Although, at PT, they did put me on this table where they hooked up these electrodes to my back and it had like a massage sensation. That was nice. If only I could get my hands on a machine like that for at home, that would be nice! I guess for now I just have to fork out the money and go get a massage like everyone else. :) Take care.

I decided it would only be appropriate to feature local music for the next few days. There have been a lot of GREAT bands to come out of the Seattle area over the years so I should have a ton of choices! This video is a bit strange, but the music has grown on me. The group, Modest Mouse is from Issaquah, Washington. Issaquah is just east of Seattle!

3 comments:

personallog! said...

Busy busy busy! Dont over do 'it' now.
Take care
Dave

camille said...

i miss you! hope to hear from you soon.enjoy your time out

Jaime said...

I am trying to not do too much. Things have been busy, but they are slowing down! I just seem to have had a lot of doctor's appointments as of lately. Now that I am starting to feel a little better (quick knock on wood, lol) things can slow down and I can relax a bit. :)

I miss you to Camille. I hope you are feeling better and the IVSM is not too bad.

I hope you guys are both doing well. I have missed you guys while I was away (and here recovering from my Avonex injection). You have been in my thoughts. Please take care and I will talk to you soon.

Love you guys!
Jaime


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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).

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