This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
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Advocacy Video
I don't have a lot of time now to update all of you.....but I wanted to share with you the video that I put together for our group of MS'ers who traveled to Olympia last month.
Also, if you get a chance...my friend Danielle is just starting up a business and although her website is not quite complete, you should all go and check it out! Click here to visit Mystic Mountain Boutique!
I hope you are all doing well. Take care and I will be back soon to update and check in on you (which thanks to Mdmhvonpa's hint of Google Reader...I have been keeping up to date on all of you!)
Have a great weekend!
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About Me
- Jaime
- I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).
Do you have a MS Story to tell? Any suggestions, ideas to make my blog better?
I would love to hear from you. Please send me an Email.....
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MS Advocacy
MS Bloggers
MS Donations
MS Links
- Accelerated Cure Project for MS
- Allison Shaddy: MS & Your Feelings!
- Consortium of MS Centers
- Cure MS Now Research Fund
- Face of MS
- Heuga Center
- International MS Support Foundation
- Maureen Manley: Spirit in Motion
- Montel Williams MS Foundation
- MS Active Source
- MS Association of America
- MS Complementary & Alternative Medicine
- MS Foundation
- MS International Federation
- MSplus Foundation
- MS Watch
- National MS Society
- Race to Erase MS
- Rocky Mountain MS Center
- Top 10 Sources (I'm #3)
5 comments:
Dear Jaime:
My name is Jane and I work for Representative Hankins. I was doing some research on line and I just came across your website, noticed you came from the TriCities and I read that you came to visit my boss when I was out sick. I was sorry to miss you guys. The day I'm sick, I miss our MS folks from district. I just wanted to write a note to thank you for visiting the office and I appreciate all you do to make MS understood to others who don't always understand. I have a very difficult time traveling, so I know what it takes to come over to Olympia. My husband works there also, and he was sweet enough to score me an orange scarf. Now I've got a red one and an orange one for my collection.
Take care.
--Jane
Great video, Jaime!!!!
Linda D. in Seattle
WOOHOO!!! I've upgraded and may now be able to leave comments again (holding my breath).
Great video...looks like y'all had a fabulous trip!
Linda D. in Seattle
Jane,
I hope that you are feeling better. I was sorry that we were unable to meet you during Advocacy conference but of course we understand. :) Please continue to keep in touch. Take care.
Jaime
Linda,
It was a great trip. It felt wonderful to be able to go talk with the representaives of our State and hopefully make a difference for all of us with MS. If nothing else I am sure we made an impact while in Olympia (I mean, how could you not notice everyone with orange scarves? lol). I am so happy to see that you were able to upgrade and you are now able to leave comments. I have missed all of my blogging buddies and really need to get caught up! Take care of yourself.
Jaime
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