This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
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Hey everyone! I got an email this morning from Crystal at the Seattle Chapter of the NMSS. The National MS Society is conducting a survey which will help determine the needs of those with Progressive MS. They could really use your help!

Here is a bit of the email.....

"I'm emailing you all in hopes that you can help our National office conduct a survey (yes, another survey)! This project survey will help us determine the needs of people in our Chapter area with progressive MS. The survey consists of a few demographic questions and some in regards to your experience with progressive MS.

If you or someone you know has progressive MS and would like to participate in this survey, please contact me. We can do this survey over the phone and it will only take five to ten minutes. We have a very short time frame, so please connect with me at your earliest convenience."

If you know someone with Progressive MS or have Progressive MS and live in out chapter please contact Crystal directly at (206) 284-4254 x.225 or through the 800# at (800) 344-4867 press 2, x. 225. The deadline for this survey is this Sunday, August 30th so if you can call her by Friday that would be great.

For those of you would would like to participate and live outside out chapter, please contact the main NMSS 800 # at (800) 344-4867.

Thanks all! Have a great day. :)


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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my life with MS (among other things).

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