This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
 
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A Little Better......

What a week this has been! I am doing a little better...my labs look better so I am happy about that. I went in yesterday for a special lab that will take about a week to get the results on but the doctor's think they may know why I keep getting Meningitis. They think it is a medication related Meningitis (caused by the generic Bactrim I am on from the transplant). It is a REALLY RARE side effect but it has been known to happen so I have been taken off of that. The thing is the Bactrim is used to prevent a type of pneumonia that can happen post-transplant and so they did the blood test to see what antibiotic they can give me to prevent this type of pneumonia. I should get the results next week and hopefully get on a different antibiotic, which will not only prevent the pneumonia but help so I NO LONGER get Meningitis. I NEVER want that again!

Last week I fell twice because my legs are not working real well. I am weak in the legs and having to use my walker to get around. Anyway, after an x-ray it looks like I fractured my foot so I am doing my best to stay off of it. Not something that is really hard seeing how I'm not walking really well anyway. Saturday was actually a really good day, I felt better, had some energy....it was good. Sunday was okay. Monday I was really tired and I am today as well.

It is Wednesday and so far this week has sucked though. My mom is not doing really well. She somehow injured her back and is having a hard time walking herself. My Great-Uncle passed away this week, my Dad has an ulcer on his foot so he needs to stay off of it as much as possible and I found out last night my best friend has a Brain Tumor. They think it's benign but she will need to have surgery to have it removed. They will have more information once she sees the Neurosurgeon next week. I'm keeping my fingers crossed and her in my prayers.

This week has really been a reminder that we all go through things and somehow it all works out, even if at that moment it doesn't feel that way. I hope you are doing well. Take care!

3 comments:

Herrad said...

Hello,

Please could you go and visit The Wheel of Fortuna and leave a supportive message for Steve.

His partner BobRobert is in the local hospice and is not expected to live much longer.

It is not so long since his diagnosis which makes it all even more sad.

Thanks for your support.

Love,
Herrad

Julia said...

Dear webmaster,
I came across your health blog recently. I liked the user-friendly navigation and your very active blog health posts. Very interesting topics.

I have a blog called FitGizmos talking about funny beauty and healthy gadgets around the world. Recently, I have received 10 crystal nail files and 10 neck pain relief device from a beauty and health supplier that I know for many years.

I would like to give away one of those gifts for free. In return for this, would you mind to add a link of this health website www.chiactivate.com in your blog roll?

This website talks about health and wellness machines.

After you have added the link, I will send this gift to you for free. I will even pay the shipping cost for you. So, you can choose between the crystal nail file (valued $20) or the ChiSoft neck traction device (valued $70)

I would also be interested to hear any comments or suggestions you have
about this offer. Please feel free to contact me directly via e-mail or phone at 310-2563174.

By the way, I only have 7 pieces for each gift left now.

You can read more about the crystal nail file here:

http://www.chiactivate.com/products/nailfiles/crystal-nailfiles.shtml

For the ChiSoft neck traction device, you can read more at the following link:

http://www.chisoftnecktraction.com/

Sincerely,

Sharon
Owner of the blog: www.FitGizmos.com

mouse said...

Oh Jaime, I have not been blogging for such a long time. That space called facebook has preoccupied me. It has some good points, as in instant feedback, but it is not a journal.
You are such a strong spirit. Inspirational to all of us. I am sending all the good energy that I can your way. May the stem cell transplant give you freedom from this disorder. You SO deserve that.
Love and big hugs,
Mary Mouse


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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).

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