Today is one of those days where I think I must have woke up on the wrong side of the bed. Nothing seems to be going my way today. I wonder if I went back to bed if everything would just work itself out....you know, like a do over. Unfortunately it is not that easy. Wouldn't it be nice if it was that easy though?

I am not a morning person...I mean, I do okay in the mornings but it takes me a while to get up and going. I am sure some of this has to do with my MS and some of it may just be my hardwiring....I am more of a night owl.

I started the morning off with a doctor's appointment...never a good idea, lol. Actually the appointment went okay, it was the fact that I was referred to this doctor by my PCP and well there was not much this doctor could do for me considering my PCP forgot to send my medical records. Nice! This doctor examined me anyway and took my H&P then had me reschedule for a later date.....so that he could review my records first. Talk about frustrating...not with the new doctor at all...but that stupid PCP office always seems to be dropping the ball. Did I mention that Rheumatology referral from over 2 months ago still has not been completed. Yep...time to get a new PCP office I think. I better hurry too....they are about to drive me insane.

Next I get home only to find out that there is a hold up with my starting the Novantrone. See, in order for my neuro to write the orders she would have to have hospital privileges where I have the infusion done, so I can either go to Seattle or have a local doctor write the orders. That doesn't seem like it would be too difficult right? WRONG. The local neuro won't write orders for Novantrone (even though I have seen her before and she has hospital privileges....Christina you know who I am talking about). She doesn't feel comfortable writing orders for Novantrone because it is a chemo drug so I have to be referred to an Oncologist and must establish care before I can have the infusion. This could possibly take another couple weeks or even longer. Frustrating! I just want to get it done and over with so I can feel better already. Now I am waiting to find out when the Oncologist can get me in....if it too far out then my neuro is going to have me just come to Seattle for the infusion.

Then I decide to check my email only to find out that my son is having problems in school. He has been telling me that he likes school....his classes and teachers, but he is not doing the work, he has even been skipping his first class (I suspect to finish homework because I found out he has not been bringing home all that he needs to do and has been lying about it). What am I going to do with him? He is too young if you ask me to start this behavior. What the heck is that all about? I am not sure if he is struggling with the new schedule....it is quite different after all from elementary and there is much more responsibility. Or, maybe he is getting bored (he has been in quite a bit of trouble for not paying attention and drawing in class rather than doing his classwork recently). I know he worries about me and that this illness impacts him (my starting chemo....he is 11 and so I don't think he really understands that this is a positive thing that can help me...even though I tell him that it is). I know it is not easy for him but this should not be an excuse for him to act out. I just don't get it. I mean, I acted out when I was a teenager....but I was much older...in high school before I ever tried to skip school or do anything stupid and I always got my work done. He has an appointment with his casemanager tomorrow....I sure hope she has some suggestions of what to do to help him.

Anyway....so the day so far has sucked! It is early though and so I am trying to remain positive (PMA....must stay positive) that the rest of the day (and hopefully week) will go nice and smooth. Maybe I need to just get away for a while....maybe today I will take a drive (yes, going for a drive and blasting the stereo actually relaxes me...I know I am strange, lol). I sure hope all of you are doing well. Take care!
:) <--- this is me being positive!