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Relapse......Urgh!

Last Thursday I had a meeting at Nathan's school and as I was walking in I started to loose feeling in my left leg. Nathan's case manager kind of reached for me as to hold me up and asked if I was okay. At the same time my eyesight went out for a bit....maybe 5-10 minutes. I told her I was okay and we went into the meeting. At this point I really did not think anything of it. I had been doing so well. Everything was going well with the fundraiser and as far as I could tell I had been responding well to the Novantrone. Basically all good things to report to my neuro.....or at least so I thought.

Friday rolls around and I am feeling fine. We head to Seattle for my appointment and well, the trip over is good and the trip back is a nightmare (see A VERY Long Trip). All that numbness and headache was indeed a sign of impounding relapse. Saturday and Sunday the numbness and headache continued, only I still did not think much of it as I had just seen my neurologist and had been doing so well. Dare I say I had jinxed myself?

Monday I had an appointment scheduled for a follow-up with my PCP. When I went in for the appointment I could barely walk in to the clinic as the numbness was so severe and I could hardly see out of my left eye due to the pain from my headache. The nurse came to the waiting room and asked if they could reschedule because the doctor had something come up. She said she saw me come in and was worried as I was having such a hard time. She then went to talk to the doctor and they had my dad come pick me up to take me in to the ER for treatment. Once at the ER I was evaluated and given something for the headache.....only I did not respond and got even more sick. The doctor called my neuro and they determined I am having a relapse and started me on a course of IVSM.

Tuesday I went back in for another course of IVSM. My headache would not stop and continued to get worse. I notified the nurse about it and so she contacted the doctor who ordered some IV medications......which I did not respond well to. Unfortunately I ended up back in the hospital for most of the day. The fortunate part is that the ER doc who saw me the day before was on call and so he was able to see me and make adjustments as needed. He tried to give me Imitrex for the headache thinking that just maybe it would help....seeing how it was behaving like a migraine.....but it didn't do a whole lot. It helped a little, more than anything made me really jittery. He then gave me a prescription for Relpax which did seem to help. That and a cane.

It is Friday now and I seem to have some how lost track of a couple of days. I am still numb, still weak, my head is still pounding, and I still don't feel good. Hopefully after some more rest I will be feeling back to my old self. :) I hope you all have a good weekend. Take care.

6 comments:

mdmhvonpa said...

Jamie, this just isnt fair. You work so durned hard to make things better for the rest of us at a great expense to your own well being. I think I can speak for all of us when I ask you to just slow down a bit and get healthy before you end up in a really bad place. We love you and want you to be happy and healthy. Recharge those batteries and polish up the spoons ... live to fight another day, mkay?

Suzy said...

Aww dayum Jamie....I don't even know what to say. I feel really bad for you.

Take some time out and just rest. You need some rest...this is doctor's orders. =)

Please take care of yourself, okay?

mouse said...

Oh Jamie, do what Mdmhvonpa and Suzy say if you can. I will pray that this pain and aggravation will dissapate pronto. As Mdm said,- you don't deserve this!

Linda D said...

Jaime,

Been having trouble getting my comments to "stick" on your site...hopefully this one will!

Girlfriend...you gotta stop! Drop down a few gears and rest...you get better gas mileage at a lower speed anyway...LOL

Do take care,

Linda D. in Seattle

Not sure what's happening on my end, but it certainly could be my computer or lack of understanding! Anyway...I DO hope you are resting and regaining "well" again.

LD

Jaime said...

Thanks one and all. I promise I really have been trying very hard to take it easy! I have been following the doctors orders and getting plenty of rest. I appreciate all of your kind words, thoughts, and prayers.
Jaime

Right Wing said...

It's always like that. Just when you think things are going well...slam! An attack. I hope by now you are doing better?


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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).

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