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Chemo Today.....

Today is my 2nd dose of Novantrone and I have been trying really hard to get everything done before so that I don't over do myself this time. lol The thing is that life just keeps happening. Funny how that happens. I am going to slow down and take things day by day, however....while at the same time still being involved. This time I am just not going to rush myself.

So what have I been doing? Well, you all know that I am an Ambassador for both the NMSS and the MSAA. Now some of you may think that is kind of strange (kind of like a competing thing), but this is the thing. They are both great organizations and we all have the same goal...right? Let's help everyone with MS in any way we can and I want to do whatever I can to help out....so why not volunteer with both organizations. They bring different things to the table. So, having said that....here's what is going on.

The NMSS have some great programs in this area over the next few months. For any of the programs in the Greater Washington chapter (Western and Central Washington) click here. I am working on the committees for the 2007 walk (we actually met for the first time yesterday) and I am really excited. I have volunteered before and walked several times, but it is going to be fun to be behind the scenes helping to actually put it together. I am also co-heading a walking group to help people in the area get ready for the walk.....this will be in conjunction with a new program they are doing called Family Fun Fest, which also has to do with the Walk....so lots of stuff going on there. The great bonus in that though is that the walk is not until April so we have plenty of time to do it, there are several of us on the committee (most of which have MS), and the Seattle office is still in charge of a lot of it...we are here to help them facilitate it on a local level....so it won't be this overwhelming thing either. It can be fun! And, to get out and encourage people to get ready f0r the walk...that will be nice. :)

I am also registered for the Dinner for Two program for people between 18-30 that is in Sunnyside in March......so if you live between Yakima and Tri-cities and you have MS and you are in that age range you should register. It will be held at Snipes Mountain Brewery and it will be very informative and lots of fun. Next month I am going to Olympia for two days to meet with the legislators for an Advocacy conference. I am really excited about that as I think it is so important for us to go talk to them so that we get the things that we need. If we don't let them know how policies effect us then we have no one to blame but our self. And, last but not least I am on a planning committee for a Women's Wellness Retreat on Bainbridge Island at the end of March. There is limited room for this retreat and so people will be selected by a lottery, but I encourage anyone in the area to register for it. It will be worth it!

For the MSAA we are of course still promoting the Everybody Falls CD. The open house is coming up soon.....March 2nd and we want that to be a huge success. If you are or know a celebrity who would like to donate an item to the auction for that night, please send me an email and I can get you in touch with Jillidair, or click on the Everybody Falls CD link off to the right. Every bit helps! And, of course if you have not purchased your CD yet....what are you waiting for? International shipping has now been added so for all of you in Canada and the UK, you are now able to get your copies! I have also been talking with Sue, and we are in the works to start up a support group in my area for people who have been newly diagnosed. Something that would meet maybe once a month.

And of course I have some fun things going on at home and Church, but that is for another post as this one is already getting long enough! lol Seeing how I will be home doing nothing for the next week....I should be able to update a bit more. I hope you are all doing well and are off to a good start in 2007! Take care.

2 comments:

personallog! said...

Not doing anything this week...My word young lady if thats nothing...Keep it calm please! Promise me(Again!) that you will take it easy.

Great choice on the music frount today. You are a budding rocker if ever I have seen one.

Love ya
Dave

Jaime said...

As I promised before I have NO PLANS! lol Okay...not entirely true....I am planning to watch some TV which includes 24! ;)


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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).

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