This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
 
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Chemo #6

What a way to start the year. 4 days in and I'm off for my 6th dose of Mitoxantrone (chemo). I am hoping that I will respond as I am already tired of being at home not feeling good. Okay, so I actually spend a lot of time at home, but when I have no energy to do anything, my nausea is bad, and I am basically just waiting to feel better....well that sucks!

Today is a better day however. I think I am finally on the way to feeling better. Usually within a couple of days I am feeling back to my old self after the chemo, this time, well lets just say it is 5 days after and I still feel like crap. Up to this morning I could not even hold anything down. Not a reaction I usually get. Justin made a comment that he wondered if maybe my body is getting used to the chemo. Hmm....maybe, but I am hopeful that is not the case as this has been the best treatment for me. Not to mention there are really not any other treatments out there left for me....so here's to remaining positive. :)

Speaking of being positive. This year I am hoping to get back to some of the things that led me to creating this blog in the first place. My hope for this blog was originally not only to have a place for how I am doing, but to explore new possibilities, advocacy, treatment information, and MS news....and most of all to be able to discuss all of these things with all of you. So, if I were to have a goal for this year, that would be it. Now that I have said that I am not making any promises as I am not real big on making new years resolutions (or goals) because if there is nothing else I have learned, what I do know is that life (especially with this illness) is unpredictable and you just have to live it day by day!

I hope that this finds each of you enjoying your new year, living life to its fullest, and happy! Take care.

2 comments:

Mima said...

Sorry to hear that you have been having a bad time of it. I also have MS, and have been dropping into you blog a bit. It is a really hard road, but staying positive is the only way to go.

mouse said...

Jaime,
You have lots of cheerleaders on your team! We know that you are strong and can beat anything. As for your resolution to keep postings on the MS newsfront, Kim is a wonderful source for that!
Stay happy!
Mouse


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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).

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