Just a quick post to let you all know about Invisible Illness Awareness week is coming up soon. Check out the website and be a featured blogger, or donate something to support those with an invisible illness!

So by now I am sure most of you have heard that news. Two more people have been confirmed to have PML after taking Tysabri. First off I want to say that my thoughts and prayers are with these two MS'er and their families, that they have a full recovery! According to the article I read that makes for a total of five. I have always been very cautious about Tysabri because of this particular side effect, but I also am aware that my risk is higher than the typical MS patient because of my history of having had cancer. For this reason my doctor does not want me to take Tysabri and I actually believe I would not qualify for it under the regulation program the FDA has set up for those on Tysabri. As I read the report though I started to wonder why this seems to be such a big deal, such a let down for the MS community when someone is diagnosed with PML. Of course I feel bad for the MS patients who develop this horrible illness as a result, but with over 31,000 people taking the medication and 5 people who have gotten PML, is it really that big of a worry? Of course it should be monitored and from what I have read it is being monitored....as a matter of fact, these last two cases were caught early because of the program in place.

I guess what I am getting at is every medication we take whether for MS, diabetes, asthma, cancer, or something else has some type of side effect possible. Have you heard the drug ads? Sometimes I think the possible side effects last longer than the actual commercial. There seems to be risk with everything and based on our personal make-up and other health issues it really comes down to do the risks outweigh the benefits? I also read on Dave's blog that the company is worried about their stocks plummeting. Well, that is just crap if you ask me. Stocks do go up and down and although I understand the importance because I was a business major, the reality is how this effects all of the people who have MS and are currently on or may benefit from Tysabri should be the primary focus!

Something I learned today from one of my docs in Seattle however is that one of the reasons Tysabri has been so important to the MS community is because it acts differently. It helps to repair the brain blood barrier and that is a key part of MS that is not always discussed. What I found out however is there is a natural supplement that I can take that has been shown to do the same type of thing only with the possible side effects. Alpha Lipoic Acid! It is not only good for those of us with MS but for anyone with Diabetes. It is known for helping to lower blood glucose levels and if you happen to be anything like me when it comes to MS and heat (can't function much above about 75`) then this is supposed to help with that too! My doc over in Seattle wants me to start on this as soon as possible and then see how I am doing when I see her on Sept. 9th. Needless to say I will be heading to the supplement store later this evening. My appointment today was a phone consult as I am still helping out with my grandma, who is doing better! That and continue on a path to being 100% wheat free...those were her instructions.

I hope all of you are happy, your MS is in check, and that August is treating you well. Take care!

I have never been so happy to have a month gone like I am about this previous month. July was a nightmare. Here's the run down.....started the month with a MS relapse, steroid treatments and chemo. Next brought my grandmother having a heart attack, kidney problems and time in the hospital. As if that was not enough, some jack*** decided it would be a good day to break into her house and steal my grandfather's credit cards. Thing is he passed away 2 years ago, so it did not take long for the card company to realize what was happening. Then last week another jack*** stole her car. My guess is that it was probably some kids out joy riding, knowing that Whittmann is a retirement area and that some of the people are snowbirds. My grandma did not need any further stress as her health is still fragile. It would be nice if the Sheriff caught the jerks that did this. Hard to say though.

I am feeling a bit better. I have been sick off and on all month. Summer colds are the worse and when your immune system is down, well....it seems I get everything I come in contact with. Anyway, so as you can see I am more than happy to say "See Ya! July and Welcome to August" as I can't wait for a happier and better month!

I know I have been very off and on when it comes to my blog. The truth is I just don't seem to have the same kind of motivation for it that I once had. It seems as if it comes in phases. This year has been one with many challenges and so it seemed to get placed on the back burner. I don't want to say I am going to be better or make any promises that I can't keep. What I can say though is that I value all of you out there who check in on me, leave me comments, and who I have become friends with. I care for all of you and do check in from time to time. I just don't always have something productive to say.

My goal of course is for my life to settle down, for me and my family to be more healthy, and to be able to get back to the way things were. The one thing I have learned through all of this is there seems to be few things that I actually have control over......especially when it comes to my health and the health of those around me. I can't control how people treat me or my family and that sometimes it is best to just walk away from a bad situation. Other times there is a solution, but it's important to weight if the stress of the situation is worth it. I just have to remember that the only thing I can do is my best and take things day by day.....put my faith in God that everything will work out, because I find that in time everything does.

I hope you are all doing well and that August brings you nothing but the best. Take care!