This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
Day -5
It is 4:30p.m. and I am part way through day -5. So far things are going well. I had two different types of chemo this morning, Cytarabine & Etoposide. My nurse has been really good about following up on my nausea and making sure I am pre-medicated, this way how much I get sick is limited. The chemos took about 4 hours and they are given twice a day. My next dose will start at 8p.m. It did make me have an upset stomach and just over all I have not felt very good, however I am responding well to the Zofran and thus far have had no throwing up! I can't ask for more than that.
This is also the chemo that will supposedly make me lose my hair, but so far that has not been the case. Then again, I have only had one dose and these two chemos I will get twice a day for 4 days. I know that at some point the vomiting and hair loss and other side effects will happen but for now I am happy to report I'm tolerating things pretty well. They really encourage eating some throughout the day and up till now I just have had no appetite. They also really encourage walking. Anything to get the blood flowing and prevent blood clots and bed sores! I can't go off this floor for infection control reasons but they tell me that 10 laps (around the hallways) is approximately 1 mile. Of course they don't want me to over do things, so I have been splitting up my walking to a few laps 2-3 times a day. Or at least that's the plan for now. I'm sure as my blood counts drop and I become more week that may change but for now I'm taking advantage of my ability to get up and move around. :)
So I have more chemo coming this evening, tons of pills (to help protect my heart and liver) and Vancomycin, which they just changed to every 8 hours instead of every 12 as my Vanco level they checked this morning was low. As usual I will update as things progress and if I am unable to then one of my parents will. I hope all of you are doing well. Take care!
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About Me
- Jaime
- I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).
MS Advocacy
MS Bloggers
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MS Links
- Accelerated Cure Project for MS
- Allison Shaddy: MS & Your Feelings!
- Consortium of MS Centers
- Cure MS Now Research Fund
- Face of MS
- Heuga Center
- International MS Support Foundation
- Maureen Manley: Spirit in Motion
- Montel Williams MS Foundation
- MS Active Source
- MS Association of America
- MS Complementary & Alternative Medicine
- MS Foundation
- MS International Federation
- MSplus Foundation
- MS Watch
- National MS Society
- Race to Erase MS
- Rocky Mountain MS Center
- Top 10 Sources (I'm #3)
3 comments:
Stay strong, Jaime, and Be Well. I'm glad they're taking such good care of you.
Hang in there!
Have not heard from you in a few days. Hoping that if you are feeling bad that you feel better soon!
Rami
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