This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
DAYS 1 & 2
This is Jaime's Mom again. The last two days have been really rough. Jaime is experiencing the effects of the chemotherapy. Her throat is very raw and it hurts to swollow and she is having a hard time talking (if any of you know Jaime, at all, this is the equivalent of the seas parting or something like that). Jaime is really nauseated and is not willing to eat or drink anything. Sleeping has been Jaime's main activiey today. I keep waking her up to see if she will eat, drink, shower or walk. All she says is that she can do that later and then she falls back to sleep. I think that the health care professionals are willing to let her sleep today, but tomorrow we will be pushing her to do more. Eating and walking are the two things that people can do to help themselves get well, so we will be trying to get Jaime to doing these things.
This weakness will last about 10 more days, so this has become a difficult time for us all.
I will keep you posted as time goes by.
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About Me
- Jaime
- I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).
MS Advocacy
MS Bloggers
MS Donations
MS Links
- Accelerated Cure Project for MS
- Allison Shaddy: MS & Your Feelings!
- Consortium of MS Centers
- Cure MS Now Research Fund
- Face of MS
- Heuga Center
- International MS Support Foundation
- Maureen Manley: Spirit in Motion
- Montel Williams MS Foundation
- MS Active Source
- MS Association of America
- MS Complementary & Alternative Medicine
- MS Foundation
- MS International Federation
- MSplus Foundation
- MS Watch
- National MS Society
- Race to Erase MS
- Rocky Mountain MS Center
- Top 10 Sources (I'm #3)
2 comments:
I appreciate very much the time taken to document your journey (and your Mother's time as well!). I currently have MS and have heard a little bit about this particular treatment. The last that I heard the mortality rate was something insane like 50% and so I never considered it. My prayers are with you as you go through this difficult time and I want to thank you again for being so painstaking about documenting how it's going. It is very helpful (not to say interesting) to me.ya
Dear Judy,
We have a daily family blog and I have asked everyone to pray for both you and Jaime. I pray for your physical and emotional strength.
We want you to know how much we care. VJM
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