This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
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I'm HOME!!!! YAY! I can't tell you how nice it is to be home for a while, even if it is just a little while. :) Unfortunately my house is NO WHERE near the sanitary conditions that it NEEDS to be when I come home after my transplant, so I'm hoping to get some of that started this weekend while I'm here. Then it will be an issue of if my family can keep it that way. LOL I do have a dog and a 14 year old BOY so that could prove to be a bit of a challenge....guess they will just have to learn. :)

This week has been no big deal, really. I had some blood work, an MRI and a clinic visit. I also had just a bit of a problem with my Hickman line. One side did not want to draw. They had to put this medication in to help with clots called TPA (which my nurse tells me is like drano for our veins) and that seemed to do the trick. When the lab did my blood draw this morning a clot came out and then it drew beautifully! They gave me the okay to come home for a few days but I have to be back on Wednesday evening. My 5 day prep for transplant starts on the 10th (Thursday) with lab work and a nasal wash. Friday brings a dental exam, Pulmonary Consult and weekly clinic visit. Then Monday, the 14th, we have the final data review, where I should get instructions as to my admission on Tuesday the 15th. I will update again when I know more.

Until then I will be here at home, enjoying time with my family, friends and dog! I hope that this finds each of you doing well and that you all have a fantastic Labor Day Weekend. Take care!


Webster said...

I thought they already did the dental exam. It sounds like the mouth is a great place for potential infections!

Jaime said...

They did do a dental exam, actually they have done two already. The there is high risk of oral mucositis (which is an inflammation and ulceration that occurs as a result of the chemo), so they watch you really carefully.

Rami Amaro said...

Hi ! I just got into the study & so I really appreciate your blog.

Rami Amaro

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I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my life with MS (among other things).

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