This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.
Support the MSAA!
Yesterday I got an email from Malcolm at the MSAA. He told me about some things going on at the MSAA. This is all information that can benefit each person who has been touched by MS. If you have MS or know someone who has MS....please pay attention! If you don't then please take the time to visit www.brightercd.com and purchase the Everybody Falls CD today to benefit the MSAA.
- Everybody Falls Charity CD - This is an exciting new fundraising project for the MSAA organized by Jilladair Carlson one of the volunteer Public Education Ambassadors, together with Erik Kjelland a very talented singer/songwriter, and Jason Kamps of Woof Designs with a host of professional volunteers from the music and events industry.
Jilladair Carlson the volunteer spearheading this project sends you the following message:
My name is Jilladair Carlson and I have been a music producer and engineer for over 23 years with La De Da Productions. I am not sure how many of you know about the “Everybody Falls” event … but I would love to tell you all about it. This is an exciting project we are doing that involves a CD and a celebrity memorabilia auction.
We are having a red-carpet CD Release Party and celebrity memorabilia auction at The Guest House, the nightclub that has been toted as the “place to be” on 27th Street in New York, Friday November 17th of this year.
We have a NY publicist, Ellyn Harris that will arrange for us to appear on all of the network morning shows and major media venues. We are also looking at many different celebrities to attend the event and we have some big celebrities that are in the works with us so that they can help bring attention to this event and MSAA. We will also have a lot of celebrity items to be auctioned off at the end of the evening where all funds raised will go to MSAA. These items range from movie memorabilia, music memorabilia and sports items.
As I write the CD is being produced and will be shipping by the end of September. I am thrilled with the recording and the music is simply fabulous. I have worked with the artist Erik Kjelland for over 4 years and he has a fabulous voice and writes amazing music. He is dedicated to helping us with this event and will perform whenever we need him to in helping to promote the CD and the message of MSAA. He is a very “current” musician in his personal style and reaches audiences young to old and genres from pop to alternative to rock. I was very careful in choosing the artist who would perform on this CD and I know I made the right decision with Erik.
I would ask that you keep something in mind. We are not merely asking for someone to give us money, we are offering them a fabulous CD from a great artist in return for their $10.00. You can’t generally go into a retail store and purchase a new CD that was just released for $10.00. So please remember that we have a viable, wonderful product we are giving people in return for their support.
You can contact me directly with questions by simply going to the website for the CD and click on the contact us page. Please contact Malcolm Friend at MSAA or myself with any questions you may have.
The name of the CD is “Everybody Falls” and the single being released off of it is called “Brighter” you can hear it at www.everybodyfalls.com it truly is an anthem for everyone touched with MS and supportive of MSAA. Please visit the site and familiarize yourself with the event and that goes along with it.
I am honored to be heading this event and hope to hear from all of you soon... I can’t stress enough how much I want to help you help MSAA with this project.
I cannot thank you enough for your support in the sales of the CD and creating awareness for MSAA. AND, on a personal note ... I was diagnosed with MS over 26 years ago and thank you from the bottom of my heart for all of your help.
Please do what you can. Remember that every little bit helps!
- Volunteer Opportunities - There are several areas in which you can volunteer if you are able.
1) Become a Public Education Ambassador: 'Since April, MSAA has recruited a team of 250 volunteer Public Education Ambassadors with a representation in each state who are available to speak on behalf of MSAA. We need your help as an Ambassador Support Volunteers to help seek out speaking opportunities to corporate groups, community groups, healthcare centers etc. Using your networking abilities, please reach out to those that can provide speaking opportunities and submit this information through http://www.msaa.com/request_speakers.html Please email Malcolm directly to mfriend@msaa.com with a short note on how you intend to help on this assignment and then please start immediately. MSAA will follow up with organizations seeking speakers within 5 business days.'
2) Become a Resource Detective: 'This is a research volunteer assignment. MSAA are developing an on-line survey form to collect this information that will be available shortly. In the meanwhile we seek to learn who is interested in this assignment. (The survey form is a major update on the Excel spreadsheets previously used). Your assignment will be to research and report back to MSAA information on any number of local resources that help the MS community. This information will be used by the MSAA helpline to direct callers to local resources in addition to MSAA programs and services. This assignment restarts as soon as the survey forms are available on line. MSAA will contact all Resource Detective volunteers and those interested in this assignment at that time. Your research can be scheduled around your existing commitments. http://www.msaa.com/resource_detectives.htm Again, to volunteer on this assignment, please email Malcolm directly to mfriend@msaa.com with your contact information he will follow up with you as soon as the new survey forms are active.'
3) Special Events: 'First and foremost MSAA is a charitable organization dedicated to enriching the quality of life for those with MS. Being a responsible organization we are conscious of the funds it costs to raise funds. In the absence of major MSAA organized special event (like bike rides and walks), MSAA have an ongoing volunteer program that seeks to recruit volunteers who can develop and execute a fundraising event to benefit the MSAA. The Everybody Falls charity CD is one example, as are golf tournaments, swim-a-thons, trivia nights and bake sales. Can you help? For further information on the special event volunteer assignment visit http://www.msaa.com/v_spec_events.html or email Malcolm directly at mfriend@msaa.com with your contact information and details of how you can help. He will follow up with you within three business days.'
- Home Office Careers for those with MS - Call Center Quality Monitoring “This call may be monitored for quality control and training purposes….” Among the many call center functions that can be performed from your home office, this opportunity is custom fit for those that have the ability to work part time from home and earn up to the amount designated by Social Security.
'J.Lodge, the leading provider of these outsource services, offers permanent part time careers in this field. “Our employees perform this critical work from their homes across the country” say Mike Schrider, President of J.Lodge. “Our Analysts are recruited, trained, monitor and analyze the calls and attend meetings from their homes” says Mike.
Following paid training and certification Analysts initially earn $8.00 per hour with a pay grade review every six months. In order to meet the flexibility needs of our workforce, the pay structure is based on a pay per audit basis.
To learn more about J.Lodge please visit http://www.jlodge.com/. To apply for a position with J.Lodge please go to http://www.jlodge.com/msaamembers.html
Whilst MSAA do not endorse this organization, respectfully bringing this information to your attention meets our mission to enrich the quality of life for individuals with multiple sclerosis. We have had the opportunity to perform our due diligence on this organization before bringing this opportunity to your attention.'
**Please note that there are not home office career opportunities available in every state so please check with the MSAA for further information if you are interested. Thank you.
I encourage each and every one of you to take the time to visit the MSAA website -->> (link is off to the right) as well as take the time to visit the brightercd website and purchase the cd to support the MSAA. Every bit helps each of us who have been touched by this illness. If you live in the New York area.....do something fun, get out of the house and go to the red-carpet event!
I hope you are all well. Take care!
Tuesday, September 26, 2006 | | 3 Comments
Do You Have Sleeping Problems?
I am not sure what it is but lately it seems like no matter how much sleep I get it is just not a restful sleep. I wake up more tired than the day before and I am just exhausted. Now, I am not sure if this is because of the level of fatigue I have with my various health problems or if there is something more going on. All I know is that I am tired and it doesn't seem to matter what I do....nothing seems to help.
For example, last night I was in bed by 9:30. This is really good for me as I am very much a night owl. I wanted to go to bed early for a couple of reasons. One being that I have been so tired lately...even my body seems to be physically exhausted (and it is not like I am super busy or anything so I am sure this has to do with my health). The other being that I wanted to get up early enough to make it to Church this morning. My Church used to meet at 1pm but recently the time has changed to 9am. I was hoping that if I could get a good nights sleep I could feel well enough in the morning that my body would work and I could make it there. This did not happen. I woke up several times throughout the night (this is typical) and even though I was able to go back to sleep I don't think I slept very well. Then when my alarm went off and it was time to get up.....I had the worst headache (still have a headache and it is 4 hours later) and my legs were in knots (charley horses, spasms, tremors). Not to mention I could not move my arm for almost a 1/2 hour and when it finally came out of that.....numbness...such a horrible feeling and strange kind of pain. Anyway, by time my body was able to function well enough for me to even get out of bed it was too late to get ready and make it on time. I have even tried setting my alarm for earlier and sometimes that works, but then I am so tired by noon that I need to go back to bed for a hour or two or I can't seem to function the remaining part of the day....when I really need energy because Nate is home from school and needs my full attention. Also, when my body does not want to work.....it just does not work. And it seems that I am having more and more of these mornings.
So how do you retrain your body? I would so love to be a morning person. I really enjoy the mornings when I am able to get up early and feel good. It is a great start to the day. The problem is that those are few and far between seeing how most mornings it takes a good hour or two (sometimes longer) for my body to function. Heck, most of the time I am even in a good mood...happy...looking forward to the day. I am not typically a grump in the morning however it is frustrating for me if I have somewhere I need to be or want to be and can't seem to function. This has been on my mind since I woke up this morning because I really want to be able to get up and function in a way that I don't have to miss going to places....like Church. I decided this would be my post for the day and maybe some of you would have ideas....maybe you also struggle with this.
Interestingly enough when I turned on my computer and MSN.com pulled up there was something that caught my attention. It said "Wide Awake? 7 steps to a better nights sleep" Although this is purely a coincidence I decided to read it. There are some great suggestions if you have problems sleeping. I think I will try these out....however I would also love to hear from any of you who may have some suggestions...something that works for you. The article claims many of our sleeping problems are from stress....and although I do have some stress in my life, it is not severe. I have been under much more stress and was able to get a better nights sleep before my health went down the drain. For this reason I feel my sleep problems result much more from my health then they do stress, however stress is never a good thing and we can all do without it. Sleep well!
Sunday, September 24, 2006 | | 9 Comments
Appointment Scheduled.....
Friday afternoon I got a call from Columbia Basin Hematology & Oncology to set up my appointment. The earliest they can get me in is October 4th (however, they did put me on the cancellation list). I will need to be there at 1:45 to have some testing done before the appointment at 2:45. I am not sure what kind of testing needs to be done but apparently the Oncologist reviewed my records and wants to do some testing before (s)he sees me. Assuming the Oncologist agrees to write the orders (I am sure there won't be a problem seeing how my Neurologist already recommended it) then I will start the Novantrone at Kadlec Hospital on the 5th or 6th.
I was hoping to get in earlier than this (as it is almost two weeks before I will have the treatment) but it turns out that this is perfect timing for me. My best friend, Val, is about to pop (due in November but both of her other kids were a month early and she has already had some contractions). Her babyshower is on the 1st and I really wanted to feel okay so that I could go. I know that if I was to have the chemo next week I would probably not feel good and would end up having to miss it. Also Justin may be able to get some time off and is planning to come for a visit on the 6th. If my chemo is on the 5th or 6th then this ends up working out great because he can help run Nate around to his football practices and game. He can help keep things running as normal as possible for Nate, which would be nice considering how hard it is on him when I don't feel good. He worries more than anyone I have ever met and he is only 11....Justin here will be a great distraction to my starting Novantrone!
Of course there is the part of me that wants to just get it done and over with so hopefully I can start to feel better (after the typical chemo side effects....for a couple days) but this just may be a blessing in disguise. I have been very tired lately and today at Nate's football game (it was 78`) I seriously needed my cooling vest (It arrived in the mail yesterday, yay!) I ended up with a headache and by time we left I was very weak. Last weekend it was cold and windy at the game so this morning when we left it was a bit windy and not too warm so I did not take it. I did take with me the head cover and cool tie...so that helped. I guess the lesson here is that I just need to take it with me anyway, that way if it gets warm I am prepared. I also have not been sleeping really well....not sure what that is all about. I get sleep....it is just not a restful sleep. You add that with all of my typical symptoms lately and you have a mixture of great fun (yes I am being sarcastic....I can't wait to feel better....bring on the Novantrone!) Hopefully tonight I can get some decent sleep and maybe a nap tomorrow afternoon would also help!
Anyway, I hope you are all having a great weekend. Take care!
Speaking of sleep....I think it is about time I go to bed. :)
Saturday, September 23, 2006 | | 2 Comments
Do Over?
Today is one of those days where I think I must have woke up on the wrong side of the bed. Nothing seems to be going my way today. I wonder if I went back to bed if everything would just work itself out....you know, like a do over. Unfortunately it is not that easy. Wouldn't it be nice if it was that easy though?
I am not a morning person...I mean, I do okay in the mornings but it takes me a while to get up and going. I am sure some of this has to do with my MS and some of it may just be my hardwiring....I am more of a night owl.
I started the morning off with a doctor's appointment...never a good idea, lol. Actually the appointment went okay, it was the fact that I was referred to this doctor by my PCP and well there was not much this doctor could do for me considering my PCP forgot to send my medical records. Nice! This doctor examined me anyway and took my H&P then had me reschedule for a later date.....so that he could review my records first. Talk about frustrating...not with the new doctor at all...but that stupid PCP office always seems to be dropping the ball. Did I mention that Rheumatology referral from over 2 months ago still has not been completed. Yep...time to get a new PCP office I think. I better hurry too....they are about to drive me insane.
Next I get home only to find out that there is a hold up with my starting the Novantrone. See, in order for my neuro to write the orders she would have to have hospital privileges where I have the infusion done, so I can either go to Seattle or have a local doctor write the orders. That doesn't seem like it would be too difficult right? WRONG. The local neuro won't write orders for Novantrone (even though I have seen her before and she has hospital privileges....Christina you know who I am talking about). She doesn't feel comfortable writing orders for Novantrone because it is a chemo drug so I have to be referred to an Oncologist and must establish care before I can have the infusion. This could possibly take another couple weeks or even longer. Frustrating! I just want to get it done and over with so I can feel better already. Now I am waiting to find out when the Oncologist can get me in....if it too far out then my neuro is going to have me just come to Seattle for the infusion.
Then I decide to check my email only to find out that my son is having problems in school. He has been telling me that he likes school....his classes and teachers, but he is not doing the work, he has even been skipping his first class (I suspect to finish homework because I found out he has not been bringing home all that he needs to do and has been lying about it). What am I going to do with him? He is too young if you ask me to start this behavior. What the heck is that all about? I am not sure if he is struggling with the new schedule....it is quite different after all from elementary and there is much more responsibility. Or, maybe he is getting bored (he has been in quite a bit of trouble for not paying attention and drawing in class rather than doing his classwork recently). I know he worries about me and that this illness impacts him (my starting chemo....he is 11 and so I don't think he really understands that this is a positive thing that can help me...even though I tell him that it is). I know it is not easy for him but this should not be an excuse for him to act out. I just don't get it. I mean, I acted out when I was a teenager....but I was much older...in high school before I ever tried to skip school or do anything stupid and I always got my work done. He has an appointment with his casemanager tomorrow....I sure hope she has some suggestions of what to do to help him.
Anyway....so the day so far has sucked! It is early though and so I am trying to remain positive (PMA....must stay positive) that the rest of the day (and hopefully week) will go nice and smooth. Maybe I need to just get away for a while....maybe today I will take a drive (yes, going for a drive and blasting the stereo actually relaxes me...I know I am strange, lol). I sure hope all of you are doing well. Take care!
:) <--- this is me being positive!
Tuesday, September 19, 2006 | | 9 Comments
What A Weekend!
Friday started with me finding out that my echo is normal. This is great news as I really don't need anything else to worry about (or any more medical problems). My neuro's office is now just trying to find a place for me to have the Novantrone and I will be all set. The preference is to do it at the hospital, but it will just all depend on if they have an infusion center and the ability to infuse Novantrone. So now I am just waiting for the call to tell me when and where to go for my first treatment.
I am a little nervous about taking this medication as I have heard it can make you very sick for a few days (just like any chemo can) and I worry how I am supposed to do everything if I am weak and sick. I am a single mom so I don't have someone to help me with the cooking, cleaning, getting my son ready in the morning and off to school, etc. Everything will be just fine, just as it always is. Some how I will manage...I just remember what it was like when I was sick before. I guess you could say I am not looking forward to that part of it. I am however hopeful that this will work and maybe in a few treatments I will feel better than I have in a long time. I am hopeful that this will slow down my MS and then maybe I will respond to Copaxone.
Nathan's guitar arrived on Friday. It is beautiful! He was so excited. He walked in from his football practice and I had it all set up. His jaw dropped and he ran to it, took it out of the case and started to play it. It will take a while to get the hang of it but I am sure he will be great! He is so excited about it that I just know he will do well as long as he sticks with it.
Saturday was a wonderful day! Nathan had his football game against the Prosser Mustangs. Prosser is one of the biggest football towns in this area and is known for being the best! They were of course nervous about playing Prosser, but guess what...they won! Score: 32 - 25. It was such an exciting game. In the last 20 seconds Nate's team tied up the game and it went into overtime. Who knew kids football could be so exciting to watch! Sunday was a day to rest and relax. We watched a some TV and just hung out at home. Nothing big!
I hope all of you had a great weekend and the week to come is wonderful as well. Take care!
Monday, September 18, 2006 | | 4 Comments
In Memory.....

It was Michaels first week on the job. After 18 years at Prudential Securities in New York City, he quit and took a trading job at a Cantor Fitzgerald office near his Rumson, N.J. home so he could convert commuter time into family time. He was temporarily stationed at the Cantor Fitzgerald office on the 104th floor of the World Trade Center while awaiting the opening of their new office located in Shrewsbury, N.J. He was only supposed to be at the WTC office for a month.
He decided to take the summer off so he could spend it with his wife, Lynn, and their three children. There were lazy days at the Jersey Shore, barbecues, and swimming. There was a glorious late-summer stay at a rented house in Provence with his best friend of 40 years and their wives. Michael was an unpretentious man with a ready laugh, happy in his own skin according to family and friends. He was a big guy, strong enough to rescue several people over the years from the surf. "We sort of thought that if anybody could come out of this, Mike could," said his sister Mary Ellen McCabe.
Michael, 42 was "a good friend, a great husband and a wonderful father," said McCabe's brother Nick. He was married and had three children, two girls and a boy. He was born and bred in New Jersey and graduated from Rutgers University. "We're right on the Jersey shore," Nick said. "He loved getting into the water and surfing. It was one of his biggest activities."
More than 3,000 people attended the memorial service for Michael McCabe at the beach club. "It was a beautiful day to remember him by," Nick said.
Information courtesy of the New York Times/Chicago Tribune.
2,996 is a tribute to the victims of 9/11. On September 11, 2006, 2,996 volunteer bloggers have joined together for a tribute to the victims of 9/11. Each person paying tribute to a single victim.
We honor them by remembering their lives, not their murderers.
For more information and a list of the tributes, click here.
I will never forget the morning of September 11, 2001. At the time I was working in the Division of Pediatric Nephrology at the U of U in Salt Lake City. My scheduled time to be at work was 7:30 a.m. I remember walking through the rehab department (as usual) where the TV was on. The news was on and there were people watching it (but this was also typical). I did not pay much attention and continued on to my office. It was not until my co-workers started to arrive around 8-8:30 that I found out anything was happening. Adria came in and said have you heard the news, someone flew a plane into the World Trade Center in New York. Immediately we pulled up MSNBC.com and started watching the coverage. The rest of the day the group of us huddled around our computers and watched the coverage, speechless, sad, trying to focus every time the phone rang or there was something that HAD to be done....on this day the rest really could wait. I don't believe we accomplished much of anything that day.
I remember that afternoon and over the next week there was increased security on campus as someone called in a threat on campus...others were protesting....there were questions in regards to some possible involvement of a man from the Ogden area (I don't believe anything came from that). The rest of the week we continued to listen to the coverage as we resumed doing our jobs. I remember going home that night and my son asking what happened and trying to explain to him in a way that he would still feel safe.
I will never forget that horrible day where so many innocent people lost their lives. I will continue to remember that day. I will remember the families who have lost loved ones and keep them in my prayers. I will remember all of the emergency workers and all the people who traveled to New York to helped out. I will remember all of the victims who gave their lives bringing down Flight 93 so that the terrorists could not crash that plane into the White House. Everyone one of these people are heroes in my eyes. Today I am honored to tribute Michael J. McCabe and all of the victims of 9/11.
Monday, September 11, 2006 | | 3 Comments
The Day After....
Yesterday was my appointment with my neurologist. It went pretty well. We discussed my concerns with going back on the Avonex, what my treatment options are, and how I am doing. So...here is the update.
- No more Avonex for me! I am happy about this as I did not like the way I responded to it (see previous post). Now, for anyone out there reading this and is considering Avonex, please remember that we all respond different and just because this medication did not work for me it doesn't mean it won't work for you. It just might be the right one for you. You won't know unless you try!
- Unfortunately I am still having this flare....although it is getting better. According to my neurologist my illness is "very active" right now. She is having me get an echo today and if everything looks good I will be starting on Novantrone sometime in the next week or two (as soon as my neurologist gets the results back).
- I will go back to see her 6 weeks after the first Novantrone and if I am improving she is considering putting me back on Copaxone. I was not successful on this at one time, however, I also did not have a lot of side effects....I tolerated it okay. Our hope is that if the Novantrone can calm down my MS then hopefully the Copaxone can kick in and work for me. We will see how this goes. There have been some studies recently that showed improvement in people with progressing forms of MS that combined Novantrone and Copaxone....so I am remaining positive that this WILL work for me!
- Not only am I still having a flare...but my MS is progressing. I came straight out and asked her if my MS is progressing and she said that I am experiencing a combination of an active flare and progression. This is why it is so important to find something to calm down my MS. Of course this is not what I wanted to hear (no one likes to face the fact that we are progressing), but I am not surprised either as this is my third flare in less than a year.
So, basically everything went well. She confirmed what I thought may have been going on....progressing and there not being many options in regards to treatment for me. As difficult as it can be to hear these things sometimes, I am actually glad that I know now rather than just thinking this is probably what is going on. I don't like the idea that I am progressing...no one does, but I know that I have a great doctor and the best family...together we can make this work.
Also, I had my endoscopy yesterday....everything went well. No ulcers, there was some redness and inflammation...not too surprising for someone with GERD. My GI doc took some biopsies but over all everything looked about the same it did on my last endoscopy. There is nothing to show what is causing all that abdominal pain....on to the next test.
Well, I hope you are all doing well. Please take care of yourself and have a great Friday!
Friday, September 08, 2006 | | 4 Comments
The Day Before.....
It is the day before my appointment and let's hope this time everything goes as planned (last two have been rescheduled). I sure hope that everything went okay for my neurologist...she had surgery herself last week.
I have so much that I need to do today and so I am praying that I can sustain enough energy to get it all done. One can only hope, eh? I have been up for a couple hours now, getting some things ready for tomorrow and sending off emails. I have been communicating with Nathan's teachers through email, which personally I prefer to communicate this way as I am not always available on the phone (doctor's appointments, etc.) and with their schedules sometimes it can be difficult to get them on the phone. I feel it is important for us to all work together to help Nathan have the best year he can. He really loves his classes this year and enjoys each of his teachers....a very welcoming change from previous years (don't get me wrong, he liked some of his previous teachers but was unhappy at school).
With him dealing with some depression and anxiety I felt it was important to have something in order so that if he is having a hard day there was a plan in place for him to be able to go see the school counselor or just get away for a minute. He has done well so far but one of the things I know about my son is that he is very sensitive when it comes to how I am doing and his attitude really reflects it. When I have flares and/or my MS symptoms get worse he worries more and I don't want this to interfere with school. If he is unable to focus because of problems at home, he needs the availability to go take a time out or talk to someone. Hopefully my doctors will be able to get me on a treatment plan that will work but there are never any guarantees with this illness. I feel it would be better to have a plan in place so that he is supported no matter what!
I have had 3 flares in less than a year and the reality is that my illness is progressing. This is something that we have to deal with and at his age it is difficult to accept, heck some days it is hard for me to accept...but I have. Now I have to help him get by until he is ready to accept it. As difficult as this illness is on us...I think many times it is much more difficult for those around us, the ones who love us, help us, and take care of us....our support system. As helpless as we feel at times, I think it must kill them to not be able to "fix" it for us.
I have been on the computer for a while now and so my eyes have just about had it. I was so hoping after all of those steroids my eyes would be have been better by now. I guess it all just takes time. Over all I feel okay....my headache is minimal, I am not limping so much today (I think the spasms in my leg have finally slowed some). I almost wonder if I am just getting more used to some of the symptoms and so they are no longer as bothersome, even though they are still here and noticeable to me. I have had a new symtpom recently however that is very bothersome. I lost all feeling in my right hand and one of the times my right arm. This is not a good thing as I am right handed. Each time I would just loose feeling suddenly and then it would come back slowly over the next hour or two. Only once did I get it back in about a half-hour. I am hoping this is just a temporary thing!
Well, wish me luck tomorrow. I have lots to discuss with my neurologist and then I get to go in for the endoscopy where hopefully my GI can shed some light on all the abdominal pain. For now it is important to just try and remain postitive that there is something out there to help! I hope you are all doing well and having a great day! Take care.
Wednesday, September 06, 2006 | | 4 Comments
A Beautiful Drive
What a beautiful drive! Yesterday we took my Grandma to Seattle so that she could spend some time with her sister and brothers before heading back to Arizona on Tuesday. On the way back we decided to drive through Chinook pass and up around Mt. Rainier....what a drive it was. As clear as can be and not very much traffic, which was nice considering all the traffic we had on I-90. Everyone was heading out for the holiday weekend...fortunately we were going the
other way! :) Seems everyone had the same idea....go camping along the columbia river, go fishing and play on their boats! Must be nice...I wish I had a boat sometimes. Looks like fun!
So...rescheduling my neuro appointment ended up turning into a good thing. Turns out I need to have an endoscopy again, so my GI is going to do it on Thursday when I go in for my appointment with my neuro...makes it nice that I can get it all done at once. Since my GI doc is not working next week I am having it done at Northwest Hospital and I am not quite sure where that is...so I need to google it and get directions, lol. Thank goodness for the internet, eh?
Saturday, September 02, 2006 | | 5 Comments
Road Trip
Well....my doctor's appointment is off but I am still headed to Seattle anyway! My grandma is going back to Arizona so we are taking her to Seattle to fly back home. I have enjoyed spending some time with her and will miss her very much! Man...does the time fly by too. It seems as if she just got here and already it is time for her to leave. We are trying to talk her into coming back here for the holidays though so hopefully we will see her again soon enough. :)
I hope all of you have a great weekend. Do something nice for yourselves. Take care!
Friday, September 01, 2006 | | 2 Comments
All personal text & images are protected under copyright law. 2006-2009
About Me
- Jaime
- I was diagnosed with MS in 2004, have been through all of the FDA approved treatments I qualify for and now am participating in the HALT MS Study. This is my story...my life with MS (among other things).
MS Advocacy
MS Bloggers
MS Donations
MS Links
- Accelerated Cure Project for MS
- Allison Shaddy: MS & Your Feelings!
- Consortium of MS Centers
- Cure MS Now Research Fund
- Face of MS
- Heuga Center
- International MS Support Foundation
- Maureen Manley: Spirit in Motion
- Montel Williams MS Foundation
- MS Active Source
- MS Association of America
- MS Complementary & Alternative Medicine
- MS Foundation
- MS International Federation
- MSplus Foundation
- MS Watch
- National MS Society
- Race to Erase MS
- Rocky Mountain MS Center
- Top 10 Sources (I'm #3)















